The Information Commissioner's Office (ICO) highlighted the continuous failures of charities and healthcare organizations in protecting the personal data of individuals living with HIV, exposed by frequent data breaches. Despite medical advancements, stigma still surrounds HIV, preventing individuals from openly disclosing their status, impacting their dignity and privacy. The ICO emphasizes the urgent need for improved support and data protection measures, urging organizations to implement cyber security improvements promptly, like better training and proper email practices
The ICO's call for action comes after issuing fines to organizations, like the Central YMCA, which mistakenly disclosed the HIV status of individuals. The ICO stresses the importance of handling highly-sensitive HIV status information with care, emphasizing the need for secure data practices, training for staff, and prompt reporting of breaches to protect individuals' rights and privacy. https://www.computerweekly.com/news/366582913/Persistent-data-breaches-deny-people-with-HIV-dignity-privacy